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Of the 7,000 known orphan disorders, #SMA is one of the most common. Learn more: http://t.co/o2swIXrtkP http://t.co/TJs8sxm81LZach Sobiech: "You don't have to find out you're dying to start living" By @soulpancake (via @Upworthy) http://t.co/YWnvTVEuMk #amazingUpdate: Party With A Purpose 2013 a Smashing Success! | Spinal Muscular Atrophy Blog http://t.co/die86RWlWp #SMA

Thanks to all who came out to support our fight to end #SMA on 5/17! The amazing community in the #Richmond #RVA area is what makes us great@HooplaHa Thank you for sharing! Alyssa is amazing. #DareToBeRemarkable #SMA http://t.co/2GruDXiYq9Washington School Girl Scouts Show Off Their Talents For a Schoolmate http://t.co/JwD65bAnqB @gsfoundation in the news! #SMAThere are over 650 diseases covered by NINDS (http://t.co/bkak1bOyT7) - and #SMA is the closest to a cure. Learn more http://t.co/TJs8sxm81L

Gorgeous evening for a fundraiser @VAWarMemorial! #greatcause #SMA http://t.co/UU52c5DNboAbout 11,000 babies will be born today in the US. And at least one of them will have #SMA. Learn more at http://t.co/TJs8sxm81L

Party of the Year is TOMORROW @VAWarMemorial! Show your support for a great cause at http://t.co/POutpbYDa3 #Richmond #RVA #Hanover"Twenty years ago, 6 or 7 labs were working on #SMA research. Today, it's over 100." Learn more: http://t.co/o2swIXrtkP@KristenNicole25 We love seeing Shane's videos, he is a rockstar! Not even the sky's the limit. #SMA

Thank you @MetroProd for providing us with excellent and informative videos. Very grateful for your superb work! http://t.co/KUJRdHISpgLatest video update from FightSMA science co-chair Dr. Alex MacKenzie from the 2013 FightSMA Research Conference http://t.co/o2swIXrtkP #sma"#SMA research is developing at a breakneck speed & it's such an exciting time to be in the field" Learn more: http://t.co/gDqH3M38qX

If you're ever struggling with explaining Spinal Muscular Atrophy (#sma), here's a page with some help: http://t.co/bYWSx1HNQfThe UK National Screening Committee has started a national consultation on screening for Spinal Muscular Atrophy. http://t.co/COlsuJosps
Retweeted by FightSMAA message from Carice Smith, director of this year's Party w/a Purpose: Why We Do What We Do! http://t.co/cLglc1dg6t #SMA

The National Pediatric Research Network Act would establish a network of clinical trials for #SMA. You can help: http://t.co/PR4mxS1Nbi

Check out #SMA researcher and FightSMA science co-chair Dr. Chris Lorson's video update on Spinal Muscular Atrophy: http://t.co/gDqH3M38qXDon't forget the RSVP deadline for the Party with a Purpose from FightSMA Hanover (VA) has been extended to 5/13! http://t.co/ECsFc5zklW

The Party of the Year is at VA War Memorial May 17! You can still RSVP at http://t.co/LTitoL89Km #Richmond #RVA #Hanover

Next week, FightSMA Hanover hosts an awesome fundraiser for #SMA. They are fighting for a great cause! Read more at: http://t.co/9V95FEn26C

FightSMA works with the leaders in #SMA science & collaboration fostered at our meetings truly advances the field: http://t.co/IeSSopRhl0

#FF Billboard campaign from years back! http://t.co/UbVxJhGzIq #SMA #FighterHelp end #SMA - RVSP TODAY FOR PARTY WITH A PURPOSE! http://t.co/NUckLbgEYi #greatcause #Richmond #RVA #Hanover #Mechanicsville #SoVA1 in every 40 people is a carrier of the gene that causes #SMA. There is no treatment or cure - yet. Learn more at http://t.co/vTROIuTfk6

Dr. Alex MacKenzie is FightSMA Scientific Advisory Board Co-chair and this year's Webcast moderator: http://t.co/CE39dwDuE8 #SMAWhy We Do What We Do: The “Purpose” of Our “Party”! | Spinal Muscular Atrophy Blog: http://t.co/JoFaa7q2jA #SMA#SMA robs kids of the ability to walk eat & breathe. There is no treatment or cure. Our mission is to change that. http://t.co/vTROIuTfk6

Kyle gets his wish and throws an awesome first pitch! Thank you @MakeAWish and @Dbacks! http://t.co/aiaucGy8CN #SMAHelp Andrew fight SMA and RVSP for Party with a Purpose today! http://t.co/GYIGPKzbCD #Richmond #RVA #Mechanicsville #Hanover #SMA

Spinal muscular atrophy is the leading inherited cause of infant death. We are working to find a treatment or a cure! http://t.co/vTROIuTfk6Thank you Kate Middleton and Sally Evans for bringing awareness to spinal muscular atrophy! #SMA http://t.co/av1sXBuRl3

#AdaptiveYoga tailored for individuals with disabilities in #ColumbiaSC area: check it out & show your support! #SMA http://t.co/pGv60hk3QF2013 FightSMA Research Conference Slideshow http://t.co/fT5RZVLFeJ #SMA #ResearchShow your support for #SMA and RSVP today for Party with a Purpose 2013! http://t.co/b8gw0Dk74p #Richmond #RVA #Mechanicsville #greatcauseGwendolyn’s Self Awareness at the American Girl Place http://t.co/uWWsN8fpYL via @gsfoundation

2013 FightSMA Research Conference Wrapup | Spinal Muscular Atrophy Blog: http://t.co/RZrbUTU939 #SMA

Dr. Kathy Swoboda of University of Utah School of Medicine is 2013 #SMA Webcast panelist http://t.co/3v1lDTQdHT http://t.co/be7XFGp6uCRVSP for Party with a Purpose, May 17 at the VA War Memorial! All funds benefit the fight to end #SMA. http://t.co/1UBL7oRClz #RVA #Richmond

Dr. Brian Kaspar is a member of our 2013 FightSMA Webcast Panel http://t.co/xu1lCY3MGs http://t.co/be7XFGp6uC @nationwidekids #SMA#AdaptiveYoga tailored for individuals with disabilities in #ColumbiaSC area - check it out and show your support! http://t.co/pGv60hk3QFThe #NPRNA seeks to establish a network of clinical trial sites for rare disease like #SMA. You can help: http://t.co/1i8VBGKlDC

Dr. Rashmi Kothary of Ottawa Hospital Research Institute is one of our experts on this year's web panel http://t.co/QZbjfK47bk #SMAISIS Pharmaceuticals Initiates a Clinical Study of ISIS-SMN Rx in Infants With Spinal Muscular Atrophy http://t.co/8t49kIieqC #SMA
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Party with a Purpose is May 17! Help Andrew fight spinal muscular atrophy: http://t.co/mzvI17keMK #Richmond #Hanover #Mechanicsville#ICYMI FightSMA 2013 #SMA Webcast! http://t.co/be7XFGp6uC

Our warriors were in Washington last week! You, too, can help critical legislation reach the finish line: http://t.co/LzDLK1wUAv #SMADr. Steven Crone of Cincinnati Children's Hospital named 2013 Emerging Investigator Awards grantee: http://t.co/XOC4vZmcrK #SMA

Dr. Kevin Foust, of the Ohio State University, is a 2013 Emerging Investigator Awards Grantee: http://t.co/AkUdpINPG9 #SMA

@DonAmbridge It's posted! http://t.co/be7XFGp6uCFightSMA Webcast 2013 is now available on YouTube! http://t.co/be7XFGp6uC #SMADid you miss our webcast? Great news - we'll be posting the video feed VERY soon! #SMADr. Hans Rindt of the University of Missouri is a 2013 Emerging Investigator grantee http://t.co/NKKL0UIEKH #SMA

Introducing Dr. Constantin d'Ydewalle of Johns Hopkins University, 2013 Emerging Investigator Grantee http://t.co/rv5Y63sm5O

Our hearts and thoughts are with the victims in Boston today. So grateful that the GSF team is safe & accounted for: http://t.co/A9WZCPqwCTThank you to our amazing SMA scientists who attended our Conference! They are every bit as passionate about treating& curing #SMA as we are.http://t.co/YWfnKxEMiF Introducing EIA Grantee Dr. Lyndsay Murray of Ottawa Hospital Research Institutehttp://ow.ly/k4JGT #SMA

Thank you for joining us for our #SMAWebcast! Great feedback and discussions. We'll be posting a recording for anyone who missed it! #SMA

Still time to send us your #SMA questions http://t.co/vTROIuTfk6 #SMAWebcast@DonAmbridge Yes! We will post a full recording of the #SMAWebcast@drewj83 Go to http://t.co/1Gn05Nx8kO for a live link to interacthttp://t.co/1Gn05Nx8kO #SMAWebcast LIVE! http://t.co/zMVurR83h1Tweet us your #SMA questions NOW or join in live via http://t.co/vTROIuTfk6! :)Our webcast is LIVE! Join in! http://t.co/vTROIuTfk6 #SMAYou may need to download Microsoft Silverlight to view our #SMAWebcast! Do so now & be ready to join us at 6:30PM ET! http://t.co/vTROIuTfk6Today we are on Capitol Hill advocating for rare diseases like #SMA. If you can't make it to DC, you can still help! http://t.co/F4lw7WNATkFive ‘Emerging Investigator’ Grantees Named By FightSMA and Gwendolyn Strong Foundation http://t.co/ea9e2BJmM5 #SMAWe love our #Scientists!! #FightSMA http://t.co/SrhLUmn7pXFightSMA and GSF Name Five “Emerging Investigator” Grantees | Spinal Muscular Atrophy Blog http://t.co/KyiaAUE44kFightSMA & @gsfoundation wish to congratulate the five grant winners of the 2013 Emerging Investigator Awards! http://t.co/BSgafvTdyQ #SMAPlease note that if you visit the weblink prior to the broadcast you may need to refresh your browser at 6:30PM ET. #SMAWebcast #SMAOur Annual #SMAWebcast is tonight! 6:30PM ET. A link will be posted midday on http://t.co/vTROIuTfk6 #SMA

Tomorrow we're announcing w/ @gsfoundation winners of Emerging Investigator Awards! Proud to fund #NewScience in effort to find a cure #SMAHad some excellent meetings today on Capitol Hill! So inspired by the support for our effort to end rare pediatric disease #NPRNA #SMAA link to our #SMAWebcast will go live shortly before 6:30PM ET tomorrow 4/12 | Plan to join in via http://t.co/vTROIuTfk6 #SMAOur scientists are on the Hill today to advocate for #SMA and rare pediatric disease! Learn about the #NPRNA at http://t.co/1Gn05Nx8kO

Our Annual Research Conference in D.C. is starting tomorrow! Don't miss the panel discussion webcast. Details: http://t.co/6u5jJp5y6w #sma

Have you sent a question for our panel of #SMA experts at this weekend's Annual Research Conference? Details here: http://t.co/6u5jJp5y6w

We'll have six leaders in #SMA #science on board to engage with you THIS Friday! send your questions here or email: http://t.co/T2QBwkFZc9AWESOME week. Presenting GSF at UCSB. Meetings in DC. @FightSMA conference. Announcing 5 #SMA research grants. Running #BostonMarathon.
Retweeted by FightSMATweet us your #SMA questions now and join in live via http://t.co/vTROIuTfk6 on 4/12/13 6:30PM ET http://t.co/T2QBwkFZc9Emerging Investigator Awards Winners will be announced later THIS week! Proud to fund #newresearch with @gsfoundation #SMAOur friend Rachel is Running for #SMA! Please help her reach her goal - she's so close!! http://t.co/5S47HdtbSn #goodfriends #goodcause

FightSMA Annual Research Conference and Worldwide #SMA Webcast Set For April 11-12, 2013 http://t.co/swxDoQ2v1w

Tweet us your #SMA questions or email web@fightsma.org! #SMA webcast goes LIVE in one week! 4/12/13 6:30PM ET http://t.co/vTROIuTfk6Thank you @SenOrrinHatch! Your support of the effort to improve care for rare pediatric disease means the world to so many families #GoUtah!

The #NPRNA was recently reintro'd to the Senate. With your help it can reach the President's desk! Learn more: http://t.co/F5igRDT3fW #SMA

FightSMA is proud to partner with Hill-Rom USA for our 2013 Annual Conference! We are grateful for their support.FightSMA Annual Webcast is Friday April 12 at 6:30PM ET! Be sure to tune in via http://t.co/vTROIuTfk6 Tweet us your questions! #SMAWebcast

Thanks for reporting, @GlobalGenes! We're asking everyone to contact their US Senators in support of the NPRNA! http://t.co/58UhPFSU6x #SMA

It's Not in My Chart via @MDAnews http://t.co/j7KXp9jXzW Helpful insights on navigating extended hospital stays & maintaining identity #SMAThank you @PTCTherapeutics for your continued support of our fight to end #SMA. Excited to partner for another Research Conference!@FireRockProd Beautiful video! Love Shane's smile & attitude. Thank you for sharing! #SMA #HappinessIsAlwaysAnOption http://t.co/5j9HT6GDUt

Friday April 12 6:30PM ET - Interact live with our talented team of experts! http://t.co/m7pBcRimYN #SMAExcited to partner with @MetroProd for another Annual Conference! Grateful for these Friends in the Fight. http://t.co/tCrXSxnQ3A

@WidespreadPanic AMAZING show!! Thank you for supporting the fight against #SMA! http://t.co/ho1CV7xNHG@RelixMag Thanks for the share!John Bell Joined By Buck Williams, Joel Byron at Hannah's Buddies Benefit http://t.co/ZcAvoRLEvH #SMA #WidespreadPanic